So here is what I know:
I have been ill for nearly two years now and have been to more than 10 doctors who have provided as many suggested diagnosis trying to explain why my body fails intermittently.
During the diagnosis phase of my treatment, one of my doctors also found that I have Squamous Cell Carcinoma Squamous cell carcinoma - MayoClinic.com and it was malignant. It was however caught at an early stage so it was removed and so far it seems to be in control.
That surgery was in December and I had 78 staples in my hand and finger from where they removed the cancer. They also had to remove a part of the bone in my finger so I was a bit of a mess for a while.
"I did attempt to go back to work even though one hand was out of commission and my job required typing, I did my best!" After it healed I was finally permitted to return full time.
It is likely that I have more of that type of cancer in my body and perhaps in my lung but time will tell and if and when I get insurance again, they can move forward on treating that issue.
The larger problem, on a day to day basis, is the abdominal pain that I suffer from what is likely Carcinoid Syndrome. This one really sucks because it makes me so sick and I suffer so much pain that there are times when I cannot move or function. It is really hard to diagnose because it comes and goes. If you want to know more about Carcinoid here is a link that explains it in depth. Carcinoid syndrome - MayoClinic.com
There have been several other diagnoses but to this day no one is certain beyond a reasonable doubt what it is that is wrong with me. It could in fact be a combination of illness that can't be categorized as a single illness.
I am writing about this today because I want anyone who is suffering with issues like this but can't find an answer to what is going on with their body and doesn't know where to go to get help and information to feel free to contact me. I have done so much research on this subject. Obviously I am not a medical professional and I have no training to diagnose or recommend treatments. What I can offer is hope and prayer and at least a rough road map of where to look for information that may be useful to you.
There is nothing worse than going to a specialist and hearing them tell you that they can't figure out why your body is failing you. They see the symptoms, "when your blood pressure drops to 71-43 its' pretty easy to assume that something is wrong." So if I am able to provide some comfort at least I will feel like I am giving a little something back to the world and that my suffering won't be for not.
Again, the other thing that I can do is to pray for you, your family and your health. I have gained so much more out of my life since I accepted Jesus into my life and I find comfort in knowing that he is watching over me and no matter what the outcome, I have a place at his side someday.
I hope that I don't turn people off with this personal truth but you have to understand that until August of this year I was an atheist. I had never really even been to a church and I certainly had no reason to believe in God. I am well educated and throughout my adult life I have studied the origins of life, the universe and accepted science without any thought of a higher being watching over my life.
In fact the last book I was reading before I started going to church with my best friend was Hyperspace written by Michio Kako http://mkaku.org/. In fact, I used to take that book with me to doctors’ appointments to read in the waiting room while the doctors treated other patients. The more I read, the more I realized that the two are not mutually exclusive and I can reconcile the science while my faith grows and I find solace in the word of Christ.
The church that I now attend and was baptized in just a week ago, "Vineyard Columbus" Home - Vineyard Columbus is so comfortable, such a gentle place with a message and messenger that permits free thought and free will and allows me to come to Christ at my own pace has profoundly changed my outlook on life and "religion."
Let me be clear that I didn't start attending church out of fear of my illness; I was invited by my best friend to a service so that I could see that those attending the church are not some crazy fanatical crowd of mindless followers. They are not anything like the faithful people who are portrayed on television and in movies. These are normal, thinking and intelligent people who have found a truth in Jesus Christ and they are now my family.
The point is: if you feel that there is an empty place in your heart, you believe that you are alone or that your suffering is more than you can handle, please contact me through this blog and I will help you find someone to talk to at the church.
Everyone is welcome and all they do is offer help and prayer. I can't even begin to tell you everything that they have done for me but they have provided job search assistance, financial advice and counseling and most importantly for me, a family of faithful who honestly care for and about me who ask for nothing in return for all of the assistance and love that I can imagine. If you feel like this can help you, respond to the blog or just use the link that I provided to go straight to the source. They are there to help!
If you share my illness and need a guide through the difficulties and confusion of being sick and not knowing why, I want to help you too...
Bless all who read this and all who suffer and need a helping hand!